I was approved to start a trial of Ampyra. The magic walking pill for people with MS. I am excited. I asked my IV nurse about it and she said, "Ampyra works about half the time. Either it really helps or does nothing." Oh. Historically, those are not good words for me to hear. But, still. Maybe I will be in the half where it works and I'll be running soon.
Of course, in the great American spirit, it probably costs more than most people make in a year. (combined income) So, if I cannot demonstrate improvement - not going to happen.
People that see me walk probably wonder what my deal is. I try very hard to make my gait as normal as possible when I am around people. If I don't have to walk very far, it is generally okay. Just, please. Do not take me on a long walk. You will be carrying me on the way back. Or, if you are not the carrying sort, leaving me behind on the trail. I don't need walking assistance. I am way too uncoordinated to use a cane. A walker? Eh, not there. (although the shopping cart is my secret walker in the grocery store) I walked down the street to look at the moon last night - it took 15 minutes. It should have taken 5. So, it is just incredibly frustrating to be so darned slow. Oh, and I have fallen 4 times already today. Not like flat on my face or anything life or limb threatening. Just, ouch.
The Magic Pills arrive on Monday. Maybe they work. Well, Hell. There's a 50/50 chance they will!
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